When Life Gives You Lemons and FA, you make Lemon-FA

My oldest son was diagnosed with a very rare debilitating degenerative neuromuscular disease called Friedreich’s Ataxia (FA) http://www.curefa.org in 2011.  This has resulted in a loss of balance and coordination; his brain does not tell his limbs where they are in space.  Another complication of this disease is scoliosis.  He required a spinal fusion to correct his curve and he was fused from T3-L3.  Today he has very limited weight bearing ability and uses a wheelchair full time.

Back in 2015, I was working as an administrator in a spine clinic.  I am the mother of 4 kids and I was feeling completely worn out.  I had begun a serious Pilates practice about a year earlier and I instantly loved everything about Pilates.  I began to think maybe one day I could do Pilates for a living.  I thought how valuable Pilates could be for the population of patients that I was seeing at the spine clinic.  I also thought, “I think this could really help my son and others dealing with neuromuscular disease”.  I knew I wanted to make a difference.