The Heart of the FA-mily
Something so Rare.
In honour of International Rare Disease Day, I asked my son to share his perspective. We both want to begin the discussion of what life really looks like when faced with the challenges of a rare disease. Here is the viewpoint of living with Friedreich’s Ataxia (FA), these are Brendan’s own words. Brendan is currently 21 years old, he is passionate about writing, video games, music and his friends.