It has been a busy week here at ARC Pilates, there are lots of exciting things going on behind the scenes. I have had a weekend filled with discovery and education. I also finished up my campaign on a Heart a Day for FA. As I reflect on this busy time, there is one word that comes up for me and that is LOVE. <3
My oldest son was diagnosed with a very rare debilitating degenerative neuromuscular disease called Friedreich’s Ataxia (FA) http://www.curefa.org in 2011. This has resulted in a loss of balance and coordination; his brain does not tell his limbs where they are in space. Another complication of this disease is scoliosis. He required a spinal fusion to correct his curve and he was fused from T3-L3. Today he has very limited weight bearing ability and uses a wheelchair full time.
Back in 2015, I was working as an administrator in a spine clinic. I am the mother of 4 kids and I was feeling completely worn out. I had begun a serious Pilates practice about a year earlier and I instantly loved everything about Pilates. I began to think maybe one day I could do Pilates for a living. I thought how valuable Pilates could be for the population of patients that I was seeing at the spine clinic. I also thought, “I think this could really help my son and others dealing with neuromuscular disease”. I knew I wanted to make a difference.